Ask an adult about a special memory from childhood and frequently the response includes a recollection about the great outdoors. For our administrative director Patty Marsh, it includes crossing over logs and streams in her beloved home state of New Jersey. For me, it is a summer pajama party in a neighbor’s yard that included jars for catching fireflies at dusk. As I prepared for my new role as director this year, I felt it was critical to include our beautiful surroundin

Fourteen years ago, (almost to the day), my husband and I learned that our daughter, Grace, has cystic fibrosis (CF). Our sweet, spunky, and happy two-year-old had been incredibly sick for months and was in and out of the hospital with no diagnosis other than pneumonia and other respiratory issues. I still look back and wonder how it was missed. She weighed under twenty pounds yet ate around the clock and constantly labored to breathe. The diagnosis was devastating but also